Showing posts with label Science. Show all posts
Showing posts with label Science. Show all posts

Tuesday, January 10, 2012

The Obligation to Vaccinate: "Health Freedom" and communal responsibility

Cross-posted to State of Formation

While visiting my hometown over winter break, I stopped by the local natural foods store. As I waited at the cash register, I noticed a poster on the wall.  Above a stock photo of a (white) mother blissfully cradling a newborn read the caption, “Oppose Mandatory Vaccination.” Two thoughts came to mind. First, “I will no longer spend money here.” Second, “What beliefs and fears is this poster trying to exploit?” With the language of “mandatory,” the ad clearly speaks to a fear of loosing the individual freedom to make choices about health. But is freedom really the best framework to use in this scenario? Or was the ad a demonstration of how individual freedom is a poor premise on which to base discussions of public health?
The anti-vaccine movement, in its contemporary iteration, began in 1998 when the British doctor Andrew Wakefield published a paper in the medical journal The Lancet, positing a link between the Measles, Mumps, and Rubella (MMR) vaccine and autism. Subsequent studies failed to corroborate Wakefield’s claims; indeed, evidence strongly suggesting that Wakefield’s work was not only incorrect, but actively fraudulent, has since come to light. None of this has stopped the vaccine-autism claim (which grew from a specific focus on the MMR vaccine to equally inaccurate claims about mercury-based preservatives and about “too many vaccines too soon” overwhelming the immune system) from sweeping the public consciousness in a big way, aided most notably by figures such as David Kirby, Robert F. Kennedy, Jr., and Jenny McCarthy.
Tragically, the spread of this claim has had consequences: Measles, which in the mid 1990s was on the verge of eradication in the United Kingdom, has returned to endemic levels. This past year saw the largest U.S outbreak of measles in 15 years. And in Charlottesville, VA, where I live, there was a measles outbreak centered around the local Waldorf school this May.
In addition to the fact that the claims on which the entire movement is based are incorrect, and that the drop in vaccination rates precipitated by the movement is likely responsible for actually killing people, there are several other troubling premises behind it: can we, for instance, pause to note the breathtaking ableism of the assertion that risking a child’s death from infectious disease is preferable to risking autism? Equally troubling is the callous disregard of scientific consensus in favor of conspiracy theory, as well as the “Appeal to Nature” fallacy. (I would suggest that those who oppose vaccination because it does not confer “natural” immunity cease, in the name of intellectual consistency, any use of corrective lenses, contraceptives, refrigerators, computers, and so forth.)
I am most interested in here, however, in vaccine refusal as a “right.” I think this language has a particularly strong pull within religious communities. Certainly the idea of being forced to take actions contrary to one’s strongly held beliefs is anathema to many people of faith, particularly those who belong to minority traditions. And the language of “health freedom” often used in arguments for vaccine refusal echoes that of “religious freedom”—after all, if what we do with our souls is a matter of the most personal choice, surely this is also true for our bodies? Don’t we have the right to make whatever healthcare decisions we wish, however ill-advised, for ourselves and our families?
Not quite.  Not all bodily decisions are created equal. As the rise in measles rates indicate, the decision not to vaccinate has consequences for more people than those who make that decision. Indeed, as Steven L. Weinreib, M.D, pointed out in a recent New York Times op-ed, high vaccination rates are an essential bulwark against infectious disease for those who, because they are too young, have certain allergies, or are immuno-compromised, cannot be vaccinated:
Young babies, the immuno-compromised and people who get chemotherapy are not able to process most vaccinations. Live vaccines in particular, like those for measles and chickenpox, can make us sick. But if 75 percent to 95 percent of the population around us is vaccinated for a particular disease, the rest are protected through what is called herd immunity. In other words, your measles vaccine protects me against the measles.
Weinreib’s point demonstrates that the language of individual rights is insufficient when considering the ethics of vaccination and similar public health issues. Instead of thinking, “It’s my right to refuse a vaccination for myself or my child if I want to,” we should be thinking, “It’s my responsibility to vaccinate myself and my child for the health of the whole community.”
In Health Care and the Ethics of Encounter: A Jewish Discussion of Social Justice, Laurie Zoloth argues precisely this point:
At issue here is not what feels right to the individual, guided by an individual heart, but ‘What does it take to live an honest life within this particular community?’ Hence, a number of actions may be argued for, but all ought to be directed toward the community interest, not only the self. (Zoloth, 1999, 158)
Furthermore, Zoloth argues, the Jewish tradition provides a framework for such community-centered ethics: “Autonomy…is neither a presupposition nor a goal of Judaism…[a person is not] ‘entitled’ to act in complete freedom; he or she is required to act in community, in covenant with God, and in accordance with halakhah.” (Zoloth, 158)
One source for the primacy of communal obligation is the book of Ruth (in which Naomi’s family flees a famine-stricken Bethlehem for Moab, and is afterwards stricken with the deaths of all its male members), from which she derives several principles of an “ethics of encounter.” The first of these is particularly salient here: “To leave the community at a time of scarcity/danger is wrong. There is no personal escape from collective scarcity:”

Why does disaster fall upon this family? Who is [Naomi’s husband] Elimelech? The rabbinic response is that he must have been a man of substance, who abandoned Bethlehem at the first sign of trouble…Elimelech is the prudent libertarian. [He] chooses his individual solution, leaves the land and the community, and disaster strikes. Rather than turn his face to the face of the other, he turns away and heads in the opposite direction. (Zoloth, 204)
If we replace “scarcity” with “risk” in Zoloth’s formulation, we find it applies perfectly to the issue of vaccines and herd immunity. It’s true that vaccines are not without risk. A small minority of people do react badly, and there is the occasional fatality (at rates, it should be noted, that are miniscule compared to the toll of infectious disease). To vaccinate is to take a risk, albeit a very small one, for the sake of a greater personal and communal good. With vaccination rates as high as they are in the developed world, any given person can go unvaccinated and will likely remain quite safe; this is also what protects those who cannot be vaccinated or for whom vaccine-conferred immunity does not take. But too many defections, and the herd immunity that newborns, immune-compromised individuals, individuals for whom the vaccine did not work, and those who voluntarily refuse vaccination depend on will collapse. Those who refuse vaccination based upon a claim of individual autonomy thus behave exactly like Elimelech in this story—fleeing the community at the first sign of risk, and disclaiming their membership therein.
That the eradication of infectious disease depends upon a community upholding its responsibility to protect its citizens cannot be overstated. Precisely because of the nature of infectious disease, it is impossible to protect oneself by withdrawing from the community. Unless you can figure out how to stop breathing air, stop drinking water, stop eating food, and stop engaging in any physical contact with anything else, you will come in contact with vectors for infectious disease as a consequence of existing. This is a risk we share as a community; its amelioration is a responsibility we similarly share as a community. The vaccine issue is an object lesson as to the validity of Zoloth’s argument for the value of an ethic based on communal obligation in issues of health.
This public domain image is a work of the Federal Government and appears courtesy of Wikimedia.

Monday, September 12, 2011

Oh, the Clergyperson and the Scientist Should Be Friends: one social role of religion.

Note: The following is my own speculation, and I have not grounded my assertions in data unless noted otherwise. Read accordingly.

I suspect that a faith in the existence of a force in the universe that cares about you in some personal way--a moral force, a just force, a loving and caring force--is, for many, a basic psychological need. I also suspect that this need is one major catalyst--and continued motivation--for the human phenomenon of religion. Furthermore, as the sciences learn ever more about the nature and origins of the universe, I think that this motivation may be the "last one standing." And, humans being what they are, I doubt that it will ever be toppled.

I also think it is fairly clear that that force, whatever it is, is not nature-- at least, not in the purely physical sense of the word. For every anecdote purporting to demonstrate the innately compassionate character of natural systems, there is one to demonstrate the ruthless and brutal character of the same. Altruism and cooperation may be natural, but so are rape and murder; Jane Goodall may have shown the world the chimps Mel and Spindle, but she also showed them Passion.* Nor can we say that the physical and mental development of any given species demonstrates any particular regard for the survival and happiness of particular individuals. The mortality statistics regarding human childbirth before the development of modern obstetrics, for instance, should put to rest the notion that nature gives a flying fuck about whether a given person survives the very experience that is supposed to bring them into the world.** Natural systems "care" whether a design works well enough to maintain a population at or above replacement rate. Any subsequent casualties are merely collateral damage.

BUT. The above conclusion isn't necessarily easy to come to unless you have some kind of basic familiarity with the natural sciences (and specific cases within them), and a functional (if simple) understanding of how evolution works. Given the current condition of science education (at least within the US), that is a pretty big "if" for most people.

Now. Imagine you are an average person with this psychological need. Then, imagine that you have been functionally convinced, for whatever reason, of the non-existence of God (in whatever form) and/or the destructiveness/irrationality/foolishness of religious institutions. So, religion (in the sense that it is a vehicle for some sort of faith in some sort of God) is out as a way to satisfy your need for a sense of being loved on a cosmic level. Where do you go? Even the most basic understanding of world history will tell you that systems of government, for instance, can't be trusted on a deep level, nor be expected to care for you to the degree that will fulfill your need.

On the surface, especially given the preponderance of anecdotes pushing a vision of it as fundamentally gentle and compassionate, nature seems like a pretty good option. For some reason, (probably cultural, given that the dominant Western religious narratives have been pretty allergic to pantheisms) personifying nature and ascribing benevolent intent to it doesn't initially appear to smack of theism. And since you're locating these qualities within an entity that for all functional intents and purposes can conclusively be demonstrated to exist, I suspect it can pass the initial "sniff test" among those who want to see themselves as rational or science-minded in some way.

Unfortunately--at least from a purely physicalist perspective-- it's also wrong, and wrong premises can lead to wrong conclusions. All too often, I suspect (I have no data to rest this point on, though I'd be interested to know if psychological or sociological data can back my hypothesis up), basing your understanding of how nature works on the premise that nature as such gives a damn about you makes you easy prey for all manner of pseudoscience.

Let's go back to the obstetrics example. If you believe, for instance, that nature cares about you, and that therefore nature "designed" you (as a cis-woman) with a physique perfectly suited to giving birth, you might be likely to eschew hospital birth and obstetric care in favor of homebirth, either unattended or attended by a lay midwife. And you might really believe that this is the safest option. Unfortunately, you'd be wrong. CDC data consistently indicates that homebirth with a lay midwife carries three times the risk of death to the infant  as hospital birth attended by a certified nurse midwife, and double that of a hospital birth attended by an OB (the discrepancy between CNM and OB rates is attributable to the fact that OBs see far more high-risk patients that do CNMs.) The linked source, by the way, provides in turn a link to the CDC data, so you can look at the numbers yourself.

So scratching this particular itch with nature as such isn't only inaccurate, it's potentially dangerous. It's also extremely damaging as a whole to the public understanding of science. Which is why I'd like to propose that in some forms, religion may be helpful to science as a whole. If a religious institution doesn't make foundational claims about the nature of the universe such that it puts itself in conflict with the sciences, but rather provides a social space in which a person can believe that there is some kind of a moral order to the universe, generated by a cosmic force that loves them and cares for them, I think that that institution is answering a critical social (and for many people, psychological) need.

This isn't to say that religious belief makes a person immune to pseudoscience or to attributing a compassionate persona to nature-- far from it. I would suggest, however, that if a religious institution functions as I think it ought to-- not as a generator of foundationalist claims, but as a space for fellowship, for openness to this force its participants believe in, and as a moral and spiritual impetus for just, reasoned, and compassionate action (e.g, the American Civil Rights movement)-- then it is capable of functioning for many people as a bulwark against just those sorts of errors.

* Spindle was an adolescent chimpanzee in the Gombe Stream chimp community who "adopted" Mel, an unrelated orphan chimp for several months. Passion, on the other hand, was a high-ranking female in the same community who went on an extended spree of killing and eating the infants of other females for no apparent reason (e.g, food was abundant, the other females hadn't demonstrated any aggression toward her, etc.) Goodall, Through a Window: My Thirty Years With the Chimpanzees of Gombe. Mariner Books, 1990.
** The specious claims of the Natural Childbirth movement notwithstanding.

Wednesday, April 6, 2011

In case any of you STILL think vaccines cause autism...

...please allow XKCD to explain everything that is wrong with science and health journalism today.

Tuesday, March 22, 2011

Radiation

Without minimizing the disaster underway in Japan, or in any way legitimizing that loon Ann Coulter (science-based analysis of whose comment may be found here), here is some useful perspective on radiation doses.

That XKCD radiation chart everyone's been linking:




(found here)